Have I improved since my last post? I dunno.
As the experts recommend – you should reboot IF:
- You can’t access memory- or you’re having memory leaks
- You’re performance is too slow
- You have low-level error messages
- Some of your applications are NOT responding
- You’re freezing up
- You need to fix your bugs.
These all seem to apply
The glimmer I saw a few months ago has turned pretty murky lately. It seems the worse I feel – the more I learn- and then, I feel worse! Does that even make sense?
My cognitive issues don’t seem worse – but they are no better. Muscle and tendon pain is a lot WORSE – even after bilateral bursa steroid injections. Torn tendons, Tarlov cysts, spinal tumors, sacroiliac pain is off the charts most days. Lately, peripheral neuropathy too. I’m working with a PT- but I’m somehow going nowhere- so I’m putting it on hold for now.
I’m going to share some post sepsis statistics and facts with you- just in case this happens to you too.
Minnesota Hospital Association:
Sepsis survivors have impaired quality of life as long as 5 years.
JAMA:
Most survivors are left with major new deficits- both functional and cognitive.
NEJM:
Patients who survive have a higher risk for mortality for at least 4 years.
CNN
Survivors are left with major memory problems and physical limitations for years after their initial infection.
NEJM:
There are more than 1.7 million cases of sepsis every year in the US. Survivors often face long term effects post-Sepsis, including amputations, anxiety, memory loss, chronic pain, fatigue, disabling muscle and joint pain, and more……
NIH:
Neurological complications of sepsis symptoms include: polyneuropathy and myopathy. May include organ failure, damage to peripheral nerves and skeletal muscles.
CDC: Long term effects
Insomnia, Nightmares or vivid hallucinations, disabling muscle and joint pain, decreased cognitive function, loss of self-esteem, organ dysfunction, amputation.
Now you know why I need a reboot. Cuz this is not going so well. I need a new plan. So I’ll use SPRING as a springboard.
It’s a time of rebirth for body and soul, and hopefully, recovery.
“Spring is a natural resurrection, an experience in immortality.” Henry David Thoreau
Later,
I have to work on a new plan
C
11 Comments
So sorry you’re struggling still. Glad you’re still with us and pray better days are ahead for you.
Thanks for the good wishes. I plan on getting through this tough spell- it’s only a matter of how fast
Little buddy, You will get through this. You are the strongest woman I know!!! I will keep praying for you n you are always in my thoughts. Love you girl!!!❤
Thanks Little Buddy
Sorry you’re going through this but we Zebras are tough!! We have to be. My thoughts and prayers are with you hoping for better days. God bless!!
Thank you Cathy. Every day is a new day.
I understand 100%!!!! It has been 1 year since I had severe sepsis an was in the ICU for week. It was horrible. And it took so long to get to 50% better. I know you can do this because I never thought I could. I gave up so many times. Got angry so many times and cried so so many times. It is a lot of 2 steps forward and 3 steps back. Which makes UT seem impossible to get anywhere and have any progress. But I promise you it can be done. I am living proof. I love you and I understand beautiful lady!
Laura – I know it’s hard. One day I yelled – ‘I finally think I’m better’. Hubs looked at me like I was crazy! The next day I couldn’t get out of bed
Always thinking of you, Carol. I admire you so much and will keep willing that juju to find its way up to you.
Try walking, cycling to improve memory the oxygen and increased blood flow helped me within 4 months plus singing in choir also helped…I couldn’t believe the improvements!
Angela – I am walking and cycling. They help provide ‘lotion for motion’- but then I have to nap for at least 2 hrs because my legs are always so fatigued. No way could I ever sing in a choir – Sr Paul kicked me out of choir in HS – ‘ dear, you have many talents – but singing is NOT one of them’