It’s TIME for your FLU SHOT!
It’s that wonderful time of the year. When everything turns magically orange and gold. When drinks all...
Read moreSometimes I come across an article that hits home so perfectly I feel the need to share the exact words. This is...
Read moreSave the date for IDF Retreats
If you have the chance to attend one of these-you will love the smaller venue. I love the retreats! Cozy, friendly...
Read more“I find this disease so isolating”
“I find this disease so isolating! Friends don’t understand, co-workers really don’t understand. I have no energy to...
Read moreFeeling OK about feeling bad – a great article from Harvard Medical
When you have a negative emotion, are you upset or disappointed in yourself? Do you feel “bad” or “guilty” about...
Read moreWhen a blanket fort is the answer to life!
It was a week of firsts for me – and none of them were good. Combine with unplanned trip to Mayo, a lupus...
Read moreSTRESS and Rare Disease Part 3 – My Way
As promised, I would like to share some ways I have learned to deal with stress. Having had much experience over the...
Read moreSTRESS and Rare Disease Part 2
I spend quite a bit of time working on reducing stress in my life. Do you? I’ve compiled many articles on...
Read moreI know the QUESTION, How do I get the ANSWER?
I missed blogging last week because my right arm and hand are in a brace. I know I’ve mentioned my...
Read moreHow a book author helped me with my collapsed lung!
Yesterday, I was rearranging some books. I came across one that had saved me in 2008 on a business trip. This was a...
Read moreStress and rare disease – Part 1
Is this you some days? Most days? What are the reasons we get stressed? We know it’s not good for our...
Read moreI’m not telling you it’s going to be easy
I’ve been sad this week. I lost a good friend. I’ve been a patient advocate for 15 years. I’ve...
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